This past Labor Day weekend, Sonya had a big leap in her speech. She can now make the “L” sound! I saw it emerge during speech therapy last week, but this weekend it became more and more consistent. This is a sound we have been working on for…I don’t know, years? Even before she was speaking, we would say to her “la la la look!” and would show her how we place our tongue at the top of our mouths to make the “L” sound.
On rainy weekends like this past one, we love to take Sonya to the Met and “la la look” at the paintings.
Lately, Sonya asks TONS of questions constantly, and we try to get her to talk about what she is seeing in the artwork and how the figures in the painting or sculptures might be feeling and why. Her favorite sculpture of late is Adam by Tullio Lombardo, which is hidden in a room on the first floor away from the crowds. We showed Sonya how Adam had once broken into many thousands of pieces but the people at the museum put him back together like a puzzle! She also loves the story of Adam and Eve and the snake – though she might decide to just start pretending to be a puppy at any given moment. That’s three! 🙂
Sonya’s favorite activity at the Met, however, is sitting in the American Wing Cafe and enjoying some popcorn, while admiring the sculptures that surround us. We love living in New York City!
P.S. When I see painting “The Penitent Magdalene” by George de la Tour, I can’t help but want to reach out and grab the items that lay on the ground near her feet. They look just like Sonya’s CIs! Obviously, I need help at this point…
In a month, we will celebrate Sonya’s third birthday! While I can’t believe three years have passed already, I also can’t believe we have only had Sonya for three years in our lives. She has had such a profound impact on who I am.
As Sonya approaches her big day, we are also working on transferring our speech therapy services from Early Intervention (which is state-sponsored) to our local school district. To do so involves a somewhat lengthy process, including:
A referral from Sonya’s EI service coordinator, informing the school district that Sonya was born deaf, has been receiving speech therapy through EI and that she should be considered by the school district for special education services (i.e. speech therapy and in-classroom support);
A psych/ed evaluation, which assesses the child’s physical, mental, behavioral and emotional factors;
A speech and comprehension evaluation, which assesses the child’s current abilities; and
Letters from Sonya’s audiologist and surgeon detailing her hearing loss and the tools she will need to succeed in school (i.e. FM system and receivers).
In the below clip, you can watch excerpts from Sonya’s speech and comprehension evaluation. The entire evaluation was nearly two hours, but this gives you an idea. Also, I was observing behind a one sided mirror – so the quality is a bit grainy.
Once the evaluation is complete, we met with a school administrator who discussed Sonya’s progress and whether she would be granting us the accommodations we requested. Since Sonya will be in preschool five mornings a week this year, we requested a hearing education specialist to be in the classroom with her three times a week; for the school to order an FM system (and receivers that fit on Sonya’s processors) that we can use; reading help once a week; group therapy and individual therapy.
The school board meeting was one I dreaded for a long time. I had heard horror stories from other parents, who said they would resort to tears and refuse to leave the room until the administrator granted an accommodation. I heard of another parent who brings a big black binder with her child’s adorable photo on the cover. Looking extremely organized, she runs the meeting! (It’s actually a phenomenal idea). Thankfully our meeting went very smoothly. That said, we will continue to have them annually until Sonya is out of high school. Chances are, we will face such challenges in our future.
In other news, Sonya has grown so much this summer. I have noticed that when Sonya has a developmental leap, she tends to remove her CIs more frequently. Yesterday, she refused to wear them at speech therapy. It took 30 minutes of prodding before she finally agreed to wear them (the game of hot potato finally coaxed her); and this morning, she threw them off just as we entered NYU’s Cochlear Implant Center for her three month mapping. It’s frustrating to say the least. Sonya speaks loudly without her CIs and tends to hurt herself too. Yesterday she was being crazy and hit her head on the corner of a bench and now sports a small red dot right below her hairline 😦
Something tells me that we are only starting to appreciate the true challenges that await us as parents of a ‘threenager’ 🙂
Hearing Sonya Rose 